Any one who knows (med question)

[bugssy]

My little girl, Kyra was born at 26 weeks gestation. 14 weeks early had an ivh grade 4 brain bleed left side.

Has been going ok was sick last fortnight. Todat at 2.45pm i get a phone call from mum, kyra had a seizure in her sleep and was rushed to hospital where she contiued to have a seizure for an hour and a half.

Her head doctor said that it can be caused because of her brain bleed, which leaves scares on and near her brain tissue which will make her an epileptic. They are not doing tests yet as it was her first one but she is on 24 hour watch, however if she does have another they will do a ct scan and some other thing where they puncture here back to check some fluid or something,.

my poor baby is not well, can anyone that nows anything about this shed some light on the matter. Does the ivh grade 4 brain bleed seem like a logical cause which will mean long term effects. She all ready has low muscle town from the waiste down and slight cerebral palsy

talk to me guys!!!!! please!

 

[dontcloseyoureyes]

Geez bugss, know nothing of the subject but really feel for ya mate.

 

[bugssy]

i just want to break down in tears but i have to be strong for my other 4 kids. thats the hardest thing. You know what else makes it worst. You realise how much the company cares when i have a sick daughter in hospital and you can not have the day off, so i have to take Tyler 9 months and joshy 4 to work with me....... thats how good my company is hey.........makes me sick.....

 

[Son Of Coco]

I know nothing about it either mate, sorry! I'm really sorry to hear the little one's struggling though! From psych I know they can sometimes operate on the brain to stop the seizures (split-brain technique I think it's called), but I have no idea if it's applicable in this case.

 

[andyc]

Agree completely with what Smith said. All I do know is that as far as epilepsy goes, it runs in my family a little bit but really doesn't effect much as long as the proper medication is taken.

 

[NZTailender]

Really sorry to hear that Rob, hope she makes it through okay

 

[pasag]

Hope things only get better mate.

 

[sledger]

Yeah fingers crossed here for you Bugs, very sad news indeed. Where do you work? Must say I'm extremely surprised they wouldnt let you have the day off in a situation like this.

 

[Perm]

My thoughts are with you mate, seriously. Be strong.

 

[alternative]

Ouch Rob, hardly know anything about seizures. I hope for the well being of you and your family that all goes well. Hope your work understands your situation and gets you off the hook for a day or two. Goodluck mate.

 

[James]

Very sorry to hear that Rob

All the best with everything, hope it all works out for you and the family.

 

[Protean]

That is really awful. I wish you and your baby all the best. Don't know much about this condition but there are many parental support sites on the internet which could help. Here is one of them: http://www.shareyourstory.org/webx/.ef501ec

 

[Magrat Garlick]

Sorry to hear this. Wish the best for Kyra.

 

[Mister Wright]

Sorry to hear it mate, can't think of many things worse. Must be a very hard time.

Hope everything works out for you and that you all get through it ok.

 

[silentstriker]

My little girl, Kyra was born at 26 weeks gestation. 14 weeks early had an ivh grade 4 brain bleed left side.

Has been going ok was sick last fortnight. Todat at 2.45pm i get a phone call from mum, kyra had a seizure in her sleep and was rushed to hospital where she contiued to have a seizure for an hour and a half.

Her head doctor said that it can be caused because of her brain bleed, which leaves scares on and near her brain tissue which will make her an epileptic. They are not doing tests yet as it was her first one but she is on 24 hour watch, however if she does have another they will do a ct scan and some other thing where they puncture here back to check some fluid or something,.

my poor baby is not well, can anyone that nows anything about this shed some light on the matter. Does the ivh grade 4 brain bleed seem like a logical cause which will mean long term effects. She all ready has low muscle town from the waiste down and slight cerebral palsy

talk to me guys!!!!! please!

I feel for you, and I hope your child gets well real soon. The best thing for you to do is to read up as much as possible on the condition, so you can make informed decisions (getting a second opinion, making treatment choices) when needed.

Basically your brain is divided into two cerebral hemispheres, and both hemispheres have ventricles, where cerebral spinal fluid is produced and stored. That fluid then flows through to the spinal cord. In premature babies, there is an area where nerve cells are created (called germinal matrix), which disappears later on, and it is here where the bleeds can often occur.

IVH is bleeding in the ventricles. Grade 4 hemorrhage is where there is bleeding in the tissues. It is the most serious type of bleed, but that doesn't necessarily mean it is life threatening. They probably did an ultrasound, and gauge the exact amount of bleeding, and where the bleeding has taken place. Brains of babies have an amazing capacity to regenerate and grow, and you may not have many long term effects at all. It is true there might be some effects, but many of them are manageable as well.

Now, can that cause epilepsy? It's possible...the brain is a complex organ and there could be lasting effects in areas we can't even guess. When there is a bleed at such a young age, it can disrupt normal growth and damage the surrounding tissues. But epilepsy is a manageable condition and properly diagnosed and managed, she can be OK. Remember to ask the physician to explain the condition in detail to you, and don't be afraid to ask for a second opinion if you feel it is warranted (if for nothing else than your own peace of mind).

My thoughts are with you.

 

[Richard]

As with everyone so far in this thread - you have my utmost sympathies Rob. Cannot imagine what it must be like to be in the position you are now and hope all is eventually well for your lass.

And as with almost everyone - don't know enough about human biology to be able to know more, but it seems ss has done a decent job.

 

[cpr]

Yeah, SS is definately the medic on here, rest of us can only offer our thoughts to you and your family, and hope that she recovers soon.

 

[silentstriker]

Err, just want to reiterate that I am NOT a doctor, so take my advice with a grain of salt (or a whole truckload of salt) and obviously talk to your physicians. I just have some knowledge of human physiology that I hope is helpful.

 

[grecian]

Have no idea how badly you must be feeling, so I'll just say, I hope everything goes well for you and yours, mate.

 

[DCC_legend]

Really do hope all goes well for you, mate.